Wellington Day 13
The 39 Steps
Margaret was really bubbling today and you could sense the pride she took in her achievements as she was taken down two floors and had to then walk up and down Un-Assisted.
Also improving is her arm movement and she can now raise it up regularly to touch her nose.
The only setback is that her speech has improved so much that she is now telling everyone off, or giving orders to Nicola clean up the room or "leave it alone" to Christopher, referencing to the remote control.
She is looking forward to tomorrow when the therapist is taking her to Tesco Local to buy pasta and then go back to the kitchen to cook it. It was at this point that Margaret decided to tell us that she had already been to the kitchen to cook breakfast. Joseph will be able to have his pasta sauce on Thursdays again soon.
I was able to phone her today and we had a good chat at lunchtime when she told me she had a really good morning, was just having lunch and then an afternoon nap.
I think she deserves it....
Tuesday, September 30, 2008
Monday, September 29, 2008
Day 38 - Monday 29th Sept 2008
Wellington Day 12
Upping the Pace
Update on the rota with extra therapy on the arm scheduled for wednesday and friday.
She is going to be very tired after these sessions but they are paying dividends.
click to enlarge
Also there is more specific learning as far as the speech is concerned so do not be surprised if you get a phonecall next week.
Upping the Pace
Update on the rota with extra therapy on the arm scheduled for wednesday and friday.
She is going to be very tired after these sessions but they are paying dividends.
click to enlarge
Also there is more specific learning as far as the speech is concerned so do not be surprised if you get a phonecall next week.
Margaret has been told that the physio will be taking her out for a walk later this week, without the wheelchair.
They may pop round the corner to Paul's house for tea.
Day 37 - Sunday 28th Sept 2008
Wellington day 11
Home for tea
As it was such a lovely day we decided to go out for a run and come home for tea.
Karen an Carl from next door popped in with some cream buns. Also to say that they were leaving for Australia at the end of October as Karen is having a baby in February.
We had a lovely afternoon.
Sunday, September 28, 2008
Grandma related humour!
Cartoon
Brennagh found this quite funny cartoon on Bebo the other day; thought I might share it here.
Joke
The family wheeled Grandma out into the garden to enjoy the sunshine.
Grandma couldn't talk very well but she could write notes when she needed to communicate.
After a short time out on the lawn Grandma started leaning off to the
right and some family members grabbed her and straightened her up and
stuffed pillows on her right.
A short time later she started leaning off to her left and again the family
grabbed her and stuffed pillows on her left.
Soon she started leaning forward and the family members again grabbed
her and tied a pillow case around her waist to hold her up.
Her grandson, who arrived late, came running up to Grandma, "You're looking good, how are they treating you?"
Grandma took out her little notepad and slowly wrote, "They won't let me fart."
Brennagh found this quite funny cartoon on Bebo the other day; thought I might share it here.
JokeThe family wheeled Grandma out into the garden to enjoy the sunshine.
Grandma couldn't talk very well but she could write notes when she needed to communicate.
After a short time out on the lawn Grandma started leaning off to the
right and some family members grabbed her and straightened her up and
stuffed pillows on her right.
A short time later she started leaning off to her left and again the family
grabbed her and stuffed pillows on her left.
Soon she started leaning forward and the family members again grabbed
her and tied a pillow case around her waist to hold her up.
Her grandson, who arrived late, came running up to Grandma, "You're looking good, how are they treating you?"
Grandma took out her little notepad and slowly wrote, "They won't let me fart."
Day 36 - Saturday 27th Sept 2008
Wellington Day 10
Smokies to the Big Smoke
Today Geraldine and Tom came to visit from Arbroath on their way Cornwall.
We had a walk around the area with Margaret commenting on the big houses and cars in the area. We stopped off for a coffee at one of the many cafe's in the area, we were able to sit outside as it was a lovely day.
Margaret was very pleased to see them. I am sure they will add a comment once they get back from their caravan stay, and once their fingers have been treated for frostbite. Tom was sooooo looking forward to it.
Earlier in the day Margaret had a Speech session where she goes through practical things, like t-shirts, shoes etc.
Afterwards she settled down for her Strictly followed by X-Factor.
It was a happy but tiring day.
Smokies to the Big Smoke
Today Geraldine and Tom came to visit from Arbroath on their way Cornwall.
We had a walk around the area with Margaret commenting on the big houses and cars in the area. We stopped off for a coffee at one of the many cafe's in the area, we were able to sit outside as it was a lovely day.
Margaret was very pleased to see them. I am sure they will add a comment once they get back from their caravan stay, and once their fingers have been treated for frostbite. Tom was sooooo looking forward to it.
Earlier in the day Margaret had a Speech session where she goes through practical things, like t-shirts, shoes etc.
Afterwards she settled down for her Strictly followed by X-Factor.
It was a happy but tiring day.
Friday, September 26, 2008
Day 35 - Friday 26th Sep 2008
Wellington Day 9
Striding On
Margaret is making great strides; literally. Today she had a small ankle brace fitted. This gives support to the ankle and lower calf. It makes a big difference as I had a job keeping up with her tonight.
Her right arm is getting stronger and she can bend it at the elbow up to touch her chin. Pumping iron next week.
She also met some other patients in the gym today and said they were very nice.
Nicola and Joseph came to visit, by train. I wish I had too, as the traffic was horrendous today, both ways, averaging 19mph according to the readout in my new car.
Striding On
Margaret is making great strides; literally. Today she had a small ankle brace fitted. This gives support to the ankle and lower calf. It makes a big difference as I had a job keeping up with her tonight.
Her right arm is getting stronger and she can bend it at the elbow up to touch her chin. Pumping iron next week.
She also met some other patients in the gym today and said they were very nice.
Nicola and Joseph came to visit, by train. I wish I had too, as the traffic was horrendous today, both ways, averaging 19mph according to the readout in my new car.
As you can see from the rota again another full week is planned
^Click to enlarge^
I had a mail from Tracy at Bupa to say that the reports they get from the medical staff at the Wellington are very good and encouraging.
Geraldine and Tom are due down tomorrow from Arbroath, via Sheffield!. I am sure Geraldine will update the blog for us. Look forward to seeing her.
Nicola is going camping for the night, so it will probably be wet tomorrow, :)
Geraldine and Tom are due down tomorrow from Arbroath, via Sheffield!. I am sure Geraldine will update the blog for us. Look forward to seeing her.
Nicola is going camping for the night, so it will probably be wet tomorrow, :)
Day 34 - Thursday 25th Sep 2008
Wellington Day 8
Blah Blah Blah
Sorry for the delay, I only realised earlier this evening (Friday) that there was no update done.
I think because it was a day of consolidation rather that revelation that it slipped my mind. Nonetheless, Margaret is still making great progress.
She had a good chat with Marie on the phone, and actually talks a little better on the phone as she is more likely to answer spontaneously. She is still getting cards from people at work and I think it is time for some other visitors, hopefully later next week.
I for got to say that I took Margaret downstairs to see the new car and she sat in the drivers seat. Margaret had a little 'moment' for the first time and was upset that she could not drive away there and then. I am surprised that it has taken this long, but she has a fantastic spirit and determination.
The moment was broken however by a couple of drivers fighting for the parking space behind me. Guess what?.. The a$$hole bumped into MY NEW CAR.. He did not apologise, to be fair he did not actually get a chance to say anything as I let him off with a tut-tut-tut and a slight reprimand... or words to that effect. There was no actual damage done and he still has all his own teeth.
Poor Christopher. He only found out late-on about the ongoing problems at Heathrow and had to leave early ,6:45 to see about his flight which was showing as cancelled. His 9:10 flight did, in-fact, turn out to be cancelled and he was re booked onto the next outgoing flight which was due to depart at 10:30; this didn't actually leave until 11:30!
Have to update the activity rota for next week. will do that shortly.
Blah Blah Blah
Sorry for the delay, I only realised earlier this evening (Friday) that there was no update done.
I think because it was a day of consolidation rather that revelation that it slipped my mind. Nonetheless, Margaret is still making great progress.
She had a good chat with Marie on the phone, and actually talks a little better on the phone as she is more likely to answer spontaneously. She is still getting cards from people at work and I think it is time for some other visitors, hopefully later next week.
I for got to say that I took Margaret downstairs to see the new car and she sat in the drivers seat. Margaret had a little 'moment' for the first time and was upset that she could not drive away there and then. I am surprised that it has taken this long, but she has a fantastic spirit and determination.
The moment was broken however by a couple of drivers fighting for the parking space behind me. Guess what?.. The a$$hole bumped into MY NEW CAR.. He did not apologise, to be fair he did not actually get a chance to say anything as I let him off with a tut-tut-tut and a slight reprimand... or words to that effect. There was no actual damage done and he still has all his own teeth.
Poor Christopher. He only found out late-on about the ongoing problems at Heathrow and had to leave early ,6:45 to see about his flight which was showing as cancelled. His 9:10 flight did, in-fact, turn out to be cancelled and he was re booked onto the next outgoing flight which was due to depart at 10:30; this didn't actually leave until 11:30!
Have to update the activity rota for next week. will do that shortly.
Wednesday, September 24, 2008
Day 33 - Wednesday 24th Sep 2008
Wellington - Day 7
Quick change artist.
I've been over from Dublin, for a couple of days, every week and been in to visit Mum in the afternoons and evenings. This last week of physio in the Wellington has seen huge improvements, namely in the strength of her right leg; to such a degree that Mum can get herself out of bed, or a chair, unaided.
Until today I hadn't seen this momentous feat, so when I visited this evening and she did her party piece I just had to video it, so I could share it with you all.
Strictly Come Dancing - LIVE!
Mum has long been a fan of 'Strictly Come Dancing' and luckily her move to the Wellington coincided with the start of this years competition; now with a TV in her room she is able to enjoy it. Also, each evening, just after Mum has finished her dinner, she can sit down and enjoy the daily BBC 2 show 'It Takes Two'.
Knowing how much she loves the show Celeine and I decided we would treat Mum (and Dad) by getting tickets for the forthcoming LIVE tour and, today, I presented mum with the good news in the form of this printed invitation.
Of course, Mum was overjoyed, especially when I informed her that the seats are in the 3rd row, and showed this by gleefully sounding out the 'Strictly' theme tune. The show is not 'til February '09, but it's something to really look forward to.
I have to say, each day I notice significant improvement, which I believe is a massive factor in keeping Mum's spirit's high; there's definitely light at the end of the tunnel and it's getting brighter every day.
Quick change artist.
I've been over from Dublin, for a couple of days, every week and been in to visit Mum in the afternoons and evenings. This last week of physio in the Wellington has seen huge improvements, namely in the strength of her right leg; to such a degree that Mum can get herself out of bed, or a chair, unaided.
Until today I hadn't seen this momentous feat, so when I visited this evening and she did her party piece I just had to video it, so I could share it with you all.
Strictly Come Dancing - LIVE!
Mum has long been a fan of 'Strictly Come Dancing' and luckily her move to the Wellington coincided with the start of this years competition; now with a TV in her room she is able to enjoy it. Also, each evening, just after Mum has finished her dinner, she can sit down and enjoy the daily BBC 2 show 'It Takes Two'.
Knowing how much she loves the show Celeine and I decided we would treat Mum (and Dad) by getting tickets for the forthcoming LIVE tour and, today, I presented mum with the good news in the form of this printed invitation.
Of course, Mum was overjoyed, especially when I informed her that the seats are in the 3rd row, and showed this by gleefully sounding out the 'Strictly' theme tune. The show is not 'til February '09, but it's something to really look forward to.
I have to say, each day I notice significant improvement, which I believe is a massive factor in keeping Mum's spirit's high; there's definitely light at the end of the tunnel and it's getting brighter every day.
Day 32 - Tuesday 23rd Sep 2008
Wellington day - 6
More of the same
Another good workout. Christopher on his weekly visit from Dublin noticed the big changes since he last saw her on Thursday. The change in her whole demeanour and how much more agile and animated she has become.
Margaret took great glee in informing Chris and Nicola, while I was trying to park the NEW car, about her trip to the Central building for the consultant to look at her ears, at last.
She was taken by ambulance, which she said very well, accompanied by a nurse the whole 400 yards. I think they took the long way round the block. She was wheeled in to reception past the 8/9 people waiting straight into the consulting rooms, she had a smug smile on her face about this.
Anyway joy of joys she can hear properly now.
Dr Sharma called in again and said that the reports from the therapists are extremely good and positive and she is doing really well.
I said that we would sneak her out for a run in the car on Sunday. Might have afternoon tea at home..SSSSSSSSSSHHHHHHHHHH!
More of the same
Another good workout. Christopher on his weekly visit from Dublin noticed the big changes since he last saw her on Thursday. The change in her whole demeanour and how much more agile and animated she has become.
Margaret took great glee in informing Chris and Nicola, while I was trying to park the NEW car, about her trip to the Central building for the consultant to look at her ears, at last.
She was taken by ambulance, which she said very well, accompanied by a nurse the whole 400 yards. I think they took the long way round the block. She was wheeled in to reception past the 8/9 people waiting straight into the consulting rooms, she had a smug smile on her face about this.
Anyway joy of joys she can hear properly now.
Dr Sharma called in again and said that the reports from the therapists are extremely good and positive and she is doing really well.
I said that we would sneak her out for a run in the car on Sunday. Might have afternoon tea at home..SSSSSSSSSSHHHHHHHHHH!
Tuesday, September 23, 2008
Day 31 - Monday 22nd Sep 2008
Wellington day 5
Back to school
^Click pictures to enlarge^
As you can see Margaret now has a fuller programme.
I arrived today just as Margaret went back to the gym.
Dale who is deputising for Una, is working on the leg movement and body posture. Margaret was able to stand erect without assistance and maintain her position.
Lisa (OT) was working on the arm. She can move the arm independantly up and down about 6 inches and also clench the fingers in a grip.
Lisa (SaLT) had her working on the family names and writing with her left hand.
Even the nurse, Louise, got in on the act by having Margaret call room service, by telephone, and order coffee for two.
Dr Sharma called in at about 5:30pm and asked Margaret to read the headlines from the newspaper - the Times of course.
Not bad for day 1. Tomorrow, as you can see, is another full day. Plus, Margaret is being taken to the main building at 15:30 to have her ears suctioned, so she is going to be a happy bunny.
Back to school
^Click pictures to enlarge^
As you can see Margaret now has a fuller programme.
I arrived today just as Margaret went back to the gym.
Dale who is deputising for Una, is working on the leg movement and body posture. Margaret was able to stand erect without assistance and maintain her position.
Lisa (OT) was working on the arm. She can move the arm independantly up and down about 6 inches and also clench the fingers in a grip.
Lisa (SaLT) had her working on the family names and writing with her left hand.
Even the nurse, Louise, got in on the act by having Margaret call room service, by telephone, and order coffee for two.
Dr Sharma called in at about 5:30pm and asked Margaret to read the headlines from the newspaper - the Times of course.
Not bad for day 1. Tomorrow, as you can see, is another full day. Plus, Margaret is being taken to the main building at 15:30 to have her ears suctioned, so she is going to be a happy bunny.
Monday, September 22, 2008
ROTA - W/C 22/09/2008
Margaret's Rota for the week - click photo to enlarge
NB the Speach and Language Therapy is still to be added.
Maybe its the environment or my good coaching as she has not had any treatment yet but she can stand unaided, walk to the bathroom-with assistance, grasp with her right hand and tell me to bogger orf, I will be demanding a refund.
Sunday, September 21, 2008
Day 30 - Sunday 21st Sep 2008
Wellington Day 4
Ladies (and Men) that Lunch
There's no Stopping Mum now..she has a tracksuit and a wheel chair now she's off. Jason and Joseph came to visit and we popped down to St. Johns Wood High Street to find a coffee shop...on the way we passed the ex-Arsenal and England Footballer, Paul Merson.
We stopped off at Carluccios's for a basket of bread and a bowl of olives and of course a Latte or two.
We then rushed back to the Hotel, sorry Hospital, for mum's lunch...roast lamb and veg with a chocolate fudge cake to finish.
Ladies (and Men) that Lunch
There's no Stopping Mum now..she has a tracksuit and a wheel chair now she's off. Jason and Joseph came to visit and we popped down to St. Johns Wood High Street to find a coffee shop...on the way we passed the ex-Arsenal and England Footballer, Paul Merson.
We stopped off at Carluccios's for a basket of bread and a bowl of olives and of course a Latte or two.
We then rushed back to the Hotel, sorry Hospital, for mum's lunch...roast lamb and veg with a chocolate fudge cake to finish.
Whilst mum was eating Joseph was amusing himself.....I did try the bed myself and ended up setting off the alarm and was caught red handed by the nurse :-(
Joseph also mastered his parrallel parking in time for the Man Utd and Chelsea game whilst mum took a breather on the ventolin.....
Saturday, September 20, 2008
Day 29 - Saturday 20th Sep 2008
Wellington - day 3
Romeo Romeo wherefor...
Romeo Romeo wherefor...
The view from the balcony. I have been reliably informed that Paul McCartney's house is next to the white house behind the red tree, honest
Georgia, the Occupational Therapist, came in at noon to show Margaret and Nicola how best to operate the wheelchair and took them down St John's Wood High St. She had Margaret practicing speaking out the names of the shops; her favourite is Orland & Barnets - work it out. They then went for a stroll round the park.
I, in the interim, had spent several hours getting some new pyjamas and jogging trousers and explaining to several staff, when I counld find them, in Debenhams, Marks, C&A, Matalan and a fancy lingerie place why I was dismantling the bra's in their displays. Do you know how difficult it is to find a sports style bra that does not have clip fastenings at the back. By the way Marks had a good deal on with a twin pack for £16.....
Anyway even trying the sports shops I eventually found ( 1 ) in the correct style, which I bought, but not surprisingly it didn't fit. The only cup I am interested in now is one with coffee in it.
Nicola and Margaret decide on Sundays Lunch and dinner.
Georgia, the Occupational Therapist, came in at noon to show Margaret and Nicola how best to operate the wheelchair and took them down St John's Wood High St. She had Margaret practicing speaking out the names of the shops; her favourite is Orland & Barnets - work it out. They then went for a stroll round the park.
I, in the interim, had spent several hours getting some new pyjamas and jogging trousers and explaining to several staff, when I counld find them, in Debenhams, Marks, C&A, Matalan and a fancy lingerie place why I was dismantling the bra's in their displays. Do you know how difficult it is to find a sports style bra that does not have clip fastenings at the back. By the way Marks had a good deal on with a twin pack for £16.....
Anyway even trying the sports shops I eventually found ( 1 ) in the correct style, which I bought, but not surprisingly it didn't fit. The only cup I am interested in now is one with coffee in it.
Nicola and Margaret decide on Sundays Lunch and dinner.
This preamble leads me to the highlight of the day, or maybe the second, you decide.
Margaret wanted her photograph taken out on the balcony and, as you can see, she rose to the ocassion. I am sure you will have a large smile when you see the photograph.
Margaret wanted her photograph taken out on the balcony and, as you can see, she rose to the ocassion. I am sure you will have a large smile when you see the photograph.
Good news 2> Margaret surprised herself tonight when she sat on the chair, after a spell on the balcony, and instintively crossed her legs, right knee over left knee, and she was estatic.
It was a funny moment. I videoed her doing it again and will try later to upload it
Video to follow
Tea time again.. She nearly choked on her melon starter when I lifted the silver cover off her main course; there was a WHOLE chicken, with the trimmings.So she ate heartily while watching Strictly Come Dancing, her favourite programme.
Finally I got my orders for the washing I had to take home, what she wanted brought up and find the hoover, I told her I lost it !
WEBCAM
Do you have a webcam?
It will be possible some times to hook up to the internet with an ethernet cable in the room, so if you have a webcam and msn messenger(free) we could possibly arrange a little chat probably on the weekends. Let me know if you have another messenger service that I can link in to if you want a chat.
It will be possible some times to hook up to the internet with an ethernet cable in the room, so if you have a webcam and msn messenger(free) we could possibly arrange a little chat probably on the weekends. Let me know if you have another messenger service that I can link in to if you want a chat.
Day 28 - Friday 19th Sep 2008
Wellington Day 2
Planning
When I arrived at the hospital today I had to fight to get into the room.
Margaret was going through the planning sessions with the Co-ordinator Lisa who also does the speech therapy, the physiotherapist and the occupational therapist - who was fitting her out for her wheelchair and a couple of nurses.
The plan was drawn up for the following week with 3 sessions of therapy a day and also one on Saturday morning. I will be going in at 12:00 to meet with the therapist for the session tomorrow.
Margaret was asked what her main goals were and 1> speech 2> walking and 3> right arm was her response so the team will work on her reaching her goals. I was asked realistically how long I expected her to be in the unit amd I felt that 8 weeks would be my target. Margaret said the sooner the better but she knows it will take time.
Her consultant, Dr. Sharma, also called in to say hello and say that he has had a catch-up with Lisa and things are looking very positive for her treatment. He also stated that he would have to say NO to her often as there would be little respite in the treatment programme and no afternoon naps. She will need it anyway to cope with the meals.
Only minor irritation at present is ear wax which she is getting drops and hopefully someone to clear her ears ASAP.
Planning
When I arrived at the hospital today I had to fight to get into the room.
Margaret was going through the planning sessions with the Co-ordinator Lisa who also does the speech therapy, the physiotherapist and the occupational therapist - who was fitting her out for her wheelchair and a couple of nurses.
The plan was drawn up for the following week with 3 sessions of therapy a day and also one on Saturday morning. I will be going in at 12:00 to meet with the therapist for the session tomorrow.
Margaret was asked what her main goals were and 1> speech 2> walking and 3> right arm was her response so the team will work on her reaching her goals. I was asked realistically how long I expected her to be in the unit amd I felt that 8 weeks would be my target. Margaret said the sooner the better but she knows it will take time.
Her consultant, Dr. Sharma, also called in to say hello and say that he has had a catch-up with Lisa and things are looking very positive for her treatment. He also stated that he would have to say NO to her often as there would be little respite in the treatment programme and no afternoon naps. She will need it anyway to cope with the meals.
Only minor irritation at present is ear wax which she is getting drops and hopefully someone to clear her ears ASAP.
Thursday, September 18, 2008
Day 27 - Thursday 18th Sep 2008
Wellington Day 1
Luncheon in St. Johns Wood
Margaret was ready and waiting when Christopher and I went to pick her up from the Charing Cross hospital at 12:30pm today.
The doctor had already called in from The Wellington to ensure everything was ok for transfer. We said goodbye to the staff and went downstairs to the physiotherapy department where Emma escorted Margaret out and assisted her into the car, and off we went.
There was some busy lunchtime traffic around Hammersmith and even worse around Shepherds Bush, where the White City road (that leads up to the BBC) is closed for a massive shopping centre being built. By the time we got to the hospital we were all hungry, but as there was no wheelchair with us we could not really go into a cafe, besides there was nowhere to park.
Christopher was then dumped from the car to go into Tesco to get some sandwiches and drinks while I cruised round looking for a parking place. We eventually found one and parked up and had a picnic in the car. Are we classy or what?
The porter at the hospital kindly offered to park up the car for us for an hour while Margaret was admitted and taken up to her room.
Margaret is in room 660 on the 6th (top) floor. It is very comfortable with a wet room, combining toilet and shower, double wardrobe with safe, sizeable fridge, air conditioning and a TV with normal and some satellite channels including Sky Sports 1 & 3 - so she can watch her football.
From this point there was a bewildering array of people in and out, starting with Blood pressure monitor, next nurse checking and confirming basic details and medical history, the physio, Una, popped in to say hello, the Staff nurse then came in to do a full review of medications, height, weight, bowel movements, etc etc, I am sure at one point someone checked the labels on her underwear.
The Waitress then came in to take the order for the evening meal. We may have to start a seperate blog for the menu's. Margaret ordered, pineapple juice, Vegetable consomme followed by Scampi and chips with the Chef's selection of seasonal vegetables accompanied by roll and butter followed by Cream slice with coffee; not a bad start.
The doctor then arravided and proceeded to run a complete set of sensory and mobility tests which lasted about 40 minutes.
It was now about 5:45 and Christopher had to leave to get the train to Heathrow to catch his plane. When I came back from accompanying him to the tube, Margaret was, once again, in conversation with Una, the physio, who had popped back in to update Margaret on what will happen next. I did not get a full breakdown at this time, however the schedules for the following week are published each friday, so will update this tomorrow.
The waiter brought dinner in at about 6:30 and Margaret ate heartily, while I nibbled on my leftover sandwiches from lunchtime.
And so to bed. I closed the balcony door, oh did I mention the balcony, switched off the air conditioning, dimmed the lights and left her contentedly waiting for the Everton football match due to start at 8:00pm.
Luncheon in St. Johns Wood
Margaret was ready and waiting when Christopher and I went to pick her up from the Charing Cross hospital at 12:30pm today.
The doctor had already called in from The Wellington to ensure everything was ok for transfer. We said goodbye to the staff and went downstairs to the physiotherapy department where Emma escorted Margaret out and assisted her into the car, and off we went.
There was some busy lunchtime traffic around Hammersmith and even worse around Shepherds Bush, where the White City road (that leads up to the BBC) is closed for a massive shopping centre being built. By the time we got to the hospital we were all hungry, but as there was no wheelchair with us we could not really go into a cafe, besides there was nowhere to park.
Christopher was then dumped from the car to go into Tesco to get some sandwiches and drinks while I cruised round looking for a parking place. We eventually found one and parked up and had a picnic in the car. Are we classy or what?
The porter at the hospital kindly offered to park up the car for us for an hour while Margaret was admitted and taken up to her room.
Margaret is in room 660 on the 6th (top) floor. It is very comfortable with a wet room, combining toilet and shower, double wardrobe with safe, sizeable fridge, air conditioning and a TV with normal and some satellite channels including Sky Sports 1 & 3 - so she can watch her football.
From this point there was a bewildering array of people in and out, starting with Blood pressure monitor, next nurse checking and confirming basic details and medical history, the physio, Una, popped in to say hello, the Staff nurse then came in to do a full review of medications, height, weight, bowel movements, etc etc, I am sure at one point someone checked the labels on her underwear.
The Waitress then came in to take the order for the evening meal. We may have to start a seperate blog for the menu's. Margaret ordered, pineapple juice, Vegetable consomme followed by Scampi and chips with the Chef's selection of seasonal vegetables accompanied by roll and butter followed by Cream slice with coffee; not a bad start.
The doctor then arravided and proceeded to run a complete set of sensory and mobility tests which lasted about 40 minutes.
It was now about 5:45 and Christopher had to leave to get the train to Heathrow to catch his plane. When I came back from accompanying him to the tube, Margaret was, once again, in conversation with Una, the physio, who had popped back in to update Margaret on what will happen next. I did not get a full breakdown at this time, however the schedules for the following week are published each friday, so will update this tomorrow.
The waiter brought dinner in at about 6:30 and Margaret ate heartily, while I nibbled on my leftover sandwiches from lunchtime.
And so to bed. I closed the balcony door, oh did I mention the balcony, switched off the air conditioning, dimmed the lights and left her contentedly waiting for the Everton football match due to start at 8:00pm.
A time to reflect
As we are moving into a more settled period, I hope, for the next few months, I feel need to take time to reflect on the events of the past 4 weeks. This would probably be on a more personal level and reflect on how it affected me, the rest of the family, work and social implications, future plans and aspirations and treatment she received at Charing Cross hospital.
I am sure we have not probably had the time to express our feelings to their full extent, either being afraid to show weakness or more likely trying not to say or do something that may upset Margaret or other family and friends.
I would invite you all to add your own personal comments to this as I am sure Margaret will appreciate them when we review the notes in the months and years to come. Sometimes it is easier to write things down than to say them direct.
I am sure we have not probably had the time to express our feelings to their full extent, either being afraid to show weakness or more likely trying not to say or do something that may upset Margaret or other family and friends.
I would invite you all to add your own personal comments to this as I am sure Margaret will appreciate them when we review the notes in the months and years to come. Sometimes it is easier to write things down than to say them direct.
Day 26 - Wednesday 17th Sep 2008
Good News
Got a call this morning from Claire at the Wellington, saying that agreement had been reached with Bupa and the hospitals for Margaret to transfer tomorrow.
My thanks to the many people who have put in a lot of effort in the past few days to make this possible. Tracy-Ann Fletcher and Sam Mumby from Bupa, Claire Dunsterville from the Wellington and Rickey Godding from Charing Cross.
To celebrate we had fish and chips takeaway, courtesy of Chris.
It took two very large carrier bags to take home all the bits and pieces collected over the past few weeks including a big bear, a small bear, books, magazines, mp3 and headphones, nighties, headscarves, bandanas, lotions, potions and a large collection of get well cards which Margaret wants to take with her. I am going to need a suitcase to move her.
I will be picking Margaret up about 12:00 on Thusrday and with assistance from Emma in the physio department to get her into the car, I will drive her to the Wellington myself.
Tomorrow is a "New Beginning"
Got a call this morning from Claire at the Wellington, saying that agreement had been reached with Bupa and the hospitals for Margaret to transfer tomorrow.
My thanks to the many people who have put in a lot of effort in the past few days to make this possible. Tracy-Ann Fletcher and Sam Mumby from Bupa, Claire Dunsterville from the Wellington and Rickey Godding from Charing Cross.
To celebrate we had fish and chips takeaway, courtesy of Chris.
It took two very large carrier bags to take home all the bits and pieces collected over the past few weeks including a big bear, a small bear, books, magazines, mp3 and headphones, nighties, headscarves, bandanas, lotions, potions and a large collection of get well cards which Margaret wants to take with her. I am going to need a suitcase to move her.
I will be picking Margaret up about 12:00 on Thusrday and with assistance from Emma in the physio department to get her into the car, I will drive her to the Wellington myself.
Tomorrow is a "New Beginning"
Wednesday, September 17, 2008
Day 25 - Tuesday 16th Sept 2008
Apology to Celeine
First of all apologies to Celeine, as we haven't mentioned all her good work on Sunday. While the rest of us swanned off for refreshments Celeine gave Margaret a thorough foot massage and pedicure.
Another visit from Kal
Later on Tuesday afternoon Margaret's friend and work colleague, Kal, dropped by, bringing with her more lotions and potions (Body Shop shares are going through the roof) and gave Margaret a manicure and a good rub down.
In general it was a relaxing day with the usual steady progress, with more work on speech and occupational therapy; each day is bringing more and more right-arm movement and we are delighted with the progress.
Margaret is beginning to realise that she is a lot better off than some of the other "inmates", and her sense of humour is coming to the fore as she regularly passes comments on the comings and goings of her ward-mates.
First of all apologies to Celeine, as we haven't mentioned all her good work on Sunday. While the rest of us swanned off for refreshments Celeine gave Margaret a thorough foot massage and pedicure.
Another visit from Kal
Later on Tuesday afternoon Margaret's friend and work colleague, Kal, dropped by, bringing with her more lotions and potions (Body Shop shares are going through the roof) and gave Margaret a manicure and a good rub down.
In general it was a relaxing day with the usual steady progress, with more work on speech and occupational therapy; each day is bringing more and more right-arm movement and we are delighted with the progress.
Margaret is beginning to realise that she is a lot better off than some of the other "inmates", and her sense of humour is coming to the fore as she regularly passes comments on the comings and goings of her ward-mates.
Tuesday, September 16, 2008
Day 24 - Monday 15th Sep 2008
The Assessment
No rest for the wicked.
After a hectic weekend there was no respite on the treatment front.
I went into hospital early as there was an assessor coming from the Wellington Hospital.
The whole process took about one and a half hours. At the end the recommendation was that Margaret would be an ideal patient for the programme. The proposal sent to Bupa would be for 12 weeks aiming for full rehabillitation by Christmas. Although this may seem a long time at first, the programme will include outpatient treatment and also home visits - day release and overnight stays. It also will include practical needs based on home circumstances, liaising with local authorities for household alterations and home care should it be required. After the first 4 weeks regime which has intensive therapy, the goals are reset on a fortnightly basis.
I was most impressed by the therapist assessor and the outline of the programme which also encourages a lot of family involvement, where possible. If I were a betting man, and knowing Margaret, I would not take any bets on it being more than eight weeks We are just waiting now for a free space, there are a LOT of sick people out there, but hopefully by the end of the week.
Busy day at the office
After I left this morning Margaret was back on the parallel bars and convinced me that she could do a full length without stopping. Steady does it.
By the time I came back in the afternoon it was time for Rob and Occupational Therapy. I was invited to join in on the session. Margaret was working on her posture and sitting up unaided. The were some stretching exercises whereby she had to maintain her balance while stretching to pick up playing cards held at different heights and distances.
The highlight of the day was the Duster Treatment.
Using her right arm she had to push the cloth across the table and fully extend the arm. She was able, with an effort, to move it about 8-10 inches, both forward and backwards.
The effort and determination to do this was awesome and a lot of satisfaction all round. I nearly had a little tear, again.
What a brave lady!
No rest for the wicked.
After a hectic weekend there was no respite on the treatment front.
I went into hospital early as there was an assessor coming from the Wellington Hospital.
The whole process took about one and a half hours. At the end the recommendation was that Margaret would be an ideal patient for the programme. The proposal sent to Bupa would be for 12 weeks aiming for full rehabillitation by Christmas. Although this may seem a long time at first, the programme will include outpatient treatment and also home visits - day release and overnight stays. It also will include practical needs based on home circumstances, liaising with local authorities for household alterations and home care should it be required. After the first 4 weeks regime which has intensive therapy, the goals are reset on a fortnightly basis.
I was most impressed by the therapist assessor and the outline of the programme which also encourages a lot of family involvement, where possible. If I were a betting man, and knowing Margaret, I would not take any bets on it being more than eight weeks We are just waiting now for a free space, there are a LOT of sick people out there, but hopefully by the end of the week.
Busy day at the office
After I left this morning Margaret was back on the parallel bars and convinced me that she could do a full length without stopping. Steady does it.
By the time I came back in the afternoon it was time for Rob and Occupational Therapy. I was invited to join in on the session. Margaret was working on her posture and sitting up unaided. The were some stretching exercises whereby she had to maintain her balance while stretching to pick up playing cards held at different heights and distances.
The highlight of the day was the Duster Treatment.
Using her right arm she had to push the cloth across the table and fully extend the arm. She was able, with an effort, to move it about 8-10 inches, both forward and backwards.
The effort and determination to do this was awesome and a lot of satisfaction all round. I nearly had a little tear, again.
What a brave lady!
Sunday, September 14, 2008
Day 23 - Sunday 14th Sep 2008
The Great Escape
Margaret had a grand day out today. Here she poses with Christopher and grandson Rory.
After a few moments in the sunshine in front of the hospital we made a bee line for the local cafe.
Despite the tempting menu, Margaret and Brennagh resist and just have refreshments.
Finally, Its bed time and the family are returning to Dublin where the kids have to go straight into school tomorrow morning after a 6.40 am flight. Christopher is staying on until Thursday and Celeine will be back over in a few weeks.Day 22 - Saturday 13th Sept 2008
Family Feast
Vitisors today from Ireland.
Celeine, Brennagh and Rory flew in from Dublin last night.
Although Margaret was happy to see them, the highlight of the day was dinner - PIZZA
Getting a bit bored with the hospital fare we had a feast. We only ordered a few but Margaret obviously thoroughly enjoyed hers and no-one got a scrap; she scoffed the lot.
Brennagh and Rory brought a present of a bear from the bear factory.
Vitisors today from Ireland.
Celeine, Brennagh and Rory flew in from Dublin last night.
Although Margaret was happy to see them, the highlight of the day was dinner - PIZZA
Getting a bit bored with the hospital fare we had a feast. We only ordered a few but Margaret obviously thoroughly enjoyed hers and no-one got a scrap; she scoffed the lot.
Brennagh and Rory brought a present of a bear from the bear factory.
Saturday, September 13, 2008
Day 21 - Friday 12th Sept 2008
OT with the OT
Margaret had some overtime with the Occupational Therapist today.
She was back in the gym today working on her posture, balance and right arm.There is more sensation in the arm and some perceptible movement in her fingers but takes a lot of effort.
Following Anne's comment, it is amazing what you learn at a convent and at the moment she would dearly like to tell us. However I am positive she will be able to tell us all that herself next week.
Margaret had some overtime with the Occupational Therapist today.
She was back in the gym today working on her posture, balance and right arm.There is more sensation in the arm and some perceptible movement in her fingers but takes a lot of effort.
Following Anne's comment, it is amazing what you learn at a convent and at the moment she would dearly like to tell us. However I am positive she will be able to tell us all that herself next week.
Thursday, September 11, 2008
Day 20 - Thursday 11th Sep 2008
Where to now?
After discussion with the medical staff at the hospital and with the clinical team at Bupa we are looking to have Margaret move to private rehabilitation facilities at the Wellington Hospital, St. John's Wood, North London. Someone is coming from the Wellington on Monday to assess Margaret's needs and hopefully arrange the transfer within the week. Watch this space.
More exercises in the gym, completing a further 3 lengths of the parallel bars
Still improving with her speech although having problems with her F's and C's, which is probably just as well as some frustration sets in.
Nearly drowned Margaret tonight as we washed her hair (the rest of it) over a basin.......
After discussion with the medical staff at the hospital and with the clinical team at Bupa we are looking to have Margaret move to private rehabilitation facilities at the Wellington Hospital, St. John's Wood, North London. Someone is coming from the Wellington on Monday to assess Margaret's needs and hopefully arrange the transfer within the week. Watch this space.
More exercises in the gym, completing a further 3 lengths of the parallel bars
Still improving with her speech although having problems with her F's and C's, which is probably just as well as some frustration sets in.
Nearly drowned Margaret tonight as we washed her hair (the rest of it) over a basin.......
Wednesday, September 10, 2008
Day 19 - Wednesday 10th Sep 2008
Kal pays a visit
Kal from work came to see Margaret today. She spent several hours pampering her by taking her down to the coffee shop and applying Margaret's favourite Cocoa body butter.
Margaret was back in the gym today, trainers on and ready for the off. She is putting in a lot of hard work and her right leg is getting stronger and stronger.
Chris is also back over from Dublin and will be staying with me for a week - it's his turn on the washing machine!
Kal from work came to see Margaret today. She spent several hours pampering her by taking her down to the coffee shop and applying Margaret's favourite Cocoa body butter.
Margaret was back in the gym today, trainers on and ready for the off. She is putting in a lot of hard work and her right leg is getting stronger and stronger.
Chris is also back over from Dublin and will be staying with me for a week - it's his turn on the washing machine!
Day 18 - Tuesday 9th Sep 2008
A trip to the gym.
Margaret has stepped up her physiotherapy and was taken down to the hospital gymnasium for some walking exercise with the aid of the parallel bars; she managed several lengths.
Margaret has stepped up her physiotherapy and was taken down to the hospital gymnasium for some walking exercise with the aid of the parallel bars; she managed several lengths.
Tuesday, September 9, 2008
Day 17 - Monday 8th Sep 2008
Some new visitors.
Today Margaret's mum and youngest sister, Marie, have come down from Scotland for a visit.
Margaret was on her feet at Phyios again today and is walking with the help of parallel bars!
Day 16 - Sunday 7th Sep 2008
A trip to Costa!
Nicola took Margaret out of the ward and down to the 1st floor, where she enjoyed a cappuccino in Costa. After that they headed for the ground floor for a nosey around.
Back to school
Margaret learns to write with her left hand; it's a bit shaky but you can just about understand it.
Joseph helps his grandma out with her reading.
Margaret recites the days of the week.
Nicola took Margaret out of the ward and down to the 1st floor, where she enjoyed a cappuccino in Costa. After that they headed for the ground floor for a nosey around.
Back to school
Margaret learns to write with her left hand; it's a bit shaky but you can just about understand it.
Joseph helps his grandma out with her reading.
Margaret recites the days of the week.
Day 15 - Saturday 6th Sep 2008
Day 14 - Friday 5th Sep 2008
Back on her feet again.
Today Margaret was able to sit up on the side of the bed, stand on her own two feet and make it to the wheelchair.
There'll be no stopping her now!
Margaret's speech is also coming along and was able to say "Hello, how are you?"
Today Margaret was able to sit up on the side of the bed, stand on her own two feet and make it to the wheelchair.
There'll be no stopping her now!
Margaret's speech is also coming along and was able to say "Hello, how are you?"
Day 13 - Thursday 4th Sep 2008
A visit from the hairdresser
Today we brought in the clippers and gave Margaret a well needed haircut.
It's not exactly a Vidal Sassoon job, but it's keeping her fringe out of her eyes.
Now that Margaret has her own wheelchair she went for a nosy around the other wards.
Today we brought in the clippers and gave Margaret a well needed haircut.
It's not exactly a Vidal Sassoon job, but it's keeping her fringe out of her eyes.
Now that Margaret has her own wheelchair she went for a nosy around the other wards.
Day 12 - Wednesday 3rd Sep 2008
Brought Margaret a latte again today; makes a change to the tasteless hospital coffees.
Spoke to the Speech Therapist (Emma) she gave us some exercises to do.
Margaret's catheter was also removed in the early hours and fortunately everything is in working order :0
Spoke to the Speech Therapist (Emma) she gave us some exercises to do.
Margaret's catheter was also removed in the early hours and fortunately everything is in working order :0
Day 11 - Tuesday 2nd Sep 2008
The final tube is removed.
Margaret's daughter, Nicola, and husband, John, are at her bedside - just before she has the feeding tube removed.
Margaret was moved 'again' but this time has her own room in 10 North/D Bay.
Margaret begins to look a whole lot better after having the feeding tube removed.
Now sporting a headscarf to cover the scar and dodgy hairstyle.
Margaret is sitting up and enjoying some dinner - it tastes much better without the feeding tube getting in the way. At her side, Nicola is keeping a personal journal of daily events and progress.
Margaret's daughter, Nicola, and husband, John, are at her bedside - just before she has the feeding tube removed.
Margaret was moved 'again' but this time has her own room in 10 North/D Bay.
Margaret begins to look a whole lot better after having the feeding tube removed.
Now sporting a headscarf to cover the scar and dodgy hairstyle.
Margaret is sitting up and enjoying some dinner - it tastes much better without the feeding tube getting in the way. At her side, Nicola is keeping a personal journal of daily events and progress.
Day 10 - Monday 1st Sep 2008
Staples removed
When we arrived Margaret was sitting in her chair, being measured for her own wheelchair.
After todays physiotherapty she is able to raise her right leg about 18".
We brought her some new new headscarves.
Margaret is still having the nebuliser every 2 hours and also had the staples (see picture) removed...counted 25 in total!
When we arrived Margaret was sitting in her chair, being measured for her own wheelchair.
After todays physiotherapty she is able to raise her right leg about 18".
We brought her some new new headscarves.
Margaret is still having the nebuliser every 2 hours and also had the staples (see picture) removed...counted 25 in total!
Day 9 - Sunday 31st Aug 2008
Margaret now moved further down the wing to 'E Bay' with a strange man next door and a canoodling couple opposite.
The ward has only 1 nurse per 4 patients ...you can tell!
We inquired as to when the staples in her head could be removed and it should hopefully be tomorrow, so she can shower and wash her hair.
The ward has only 1 nurse per 4 patients ...you can tell!
We inquired as to when the staples in her head could be removed and it should hopefully be tomorrow, so she can shower and wash her hair.
Day 8 - Saturday 30th Aug 2008
Took a latte in and Margaret was able to drink from an Espresso cup....she enjoyed this very much :-)
Joseph, in his gown and gloves, pays his Grandma a visit.
Margartet has the oxygen mask removed and is only assisted by a nasal tube. Here, she shows off her new hairstyle - the tape shows the size of the scar.
Joseph, in his gown and gloves, pays his Grandma a visit.
Margartet has the oxygen mask removed and is only assisted by a nasal tube. Here, she shows off her new hairstyle - the tape shows the size of the scar.
Margaret was able to eat her dinner herself, it's still of the mashed variety but boy does she enjoy it.
Margaret also got an eyeful of the man opposite....her dinner nearly re-appreared :-(
Day 7 - Friday 29th Aug 2008
Today we brought Margaret's glasses in to her - she was overjoyed!
We browsed through the newspaper and saw the 'Strictly come dancing' line up - she was very excited. It was great to know that she still understands and can read!
Tonight's dinner was a 3 course meal, containing somethig we think was Irish Stew?
We browsed through the newspaper and saw the 'Strictly come dancing' line up - she was very excited. It was great to know that she still understands and can read!
Tonight's dinner was a 3 course meal, containing somethig we think was Irish Stew?
Day 6 - Thursday 28th Aug 2008
On the move again.
Margaret was moved from ITU (11 West) to HDU (11 South) in the early afternoon. She has also begun eating thicker food now, which is great progress.
Margaret is suffering from Aphasia and is unable to speak but can do a great Norman Wisdom impression. she also tried to sing tonight, which was hilarious. It's great to see that same sense of humour.
Margaret was moved from ITU (11 West) to HDU (11 South) in the early afternoon. She has also begun eating thicker food now, which is great progress.
Margaret is suffering from Aphasia and is unable to speak but can do a great Norman Wisdom impression. she also tried to sing tonight, which was hilarious. It's great to see that same sense of humour.
Day 5 - Wednesday 27th Aug 08
Out of bed!
When we arrived our first thought was that Margaret had been moved from her room in ICU. To our surprise, she was sitting up in her wheel-chair and was eating yoghurt! Her first mouthful of normal food. The feeding tube in her nose will remain there for a few more days.
Margaret's right foot moved again :-) Mr Nesbitt, the consultant, also did some tests and was impressed.
When we arrived our first thought was that Margaret had been moved from her room in ICU. To our surprise, she was sitting up in her wheel-chair and was eating yoghurt! Her first mouthful of normal food. The feeding tube in her nose will remain there for a few more days.
Margaret's right foot moved again :-) Mr Nesbitt, the consultant, also did some tests and was impressed.
Day 4 - Tuesday 26th Aug 2008
Margaret is still struggling to cough and was put her on her left side.
John tickled the toes on Margaret's right leg and it moved - it was amazing :-)
John tickled the toes on Margaret's right leg and it moved - it was amazing :-)
Day 3 - Monday 25th Aug 2008
Breathing on her own.
Margaret is now breathing 70% on her own.
Waited all day for the breathing tubes to be removed (extubated). The tubes were finally removed at 6.30pm and Margaret is comfortably breathing on her own - albeit with the aid of an oxygen mask.
Margaret still has a lot of congestion on her chest and will need oxygen and ventilin for a few days.
Margaret is now breathing 70% on her own.
Waited all day for the breathing tubes to be removed (extubated). The tubes were finally removed at 6.30pm and Margaret is comfortably breathing on her own - albeit with the aid of an oxygen mask.
Margaret still has a lot of congestion on her chest and will need oxygen and ventilin for a few days.
Day 2 - Sunday 24th Aug 2008
Out of danger.
Margaret was kept sedated overnight and remained comfortable. On Sunday morning she was assessed by the doctors and the sedation was stopped at 11am. They say it can take hours ro even days for Margaret to wake up.
Later in the day Margaret opened her eyes and was able to see us and kind of cummunicated by squeezing our hands and nodding her head.
Margaret was kept sedated overnight and remained comfortable. On Sunday morning she was assessed by the doctors and the sedation was stopped at 11am. They say it can take hours ro even days for Margaret to wake up.
Later in the day Margaret opened her eyes and was able to see us and kind of cummunicated by squeezing our hands and nodding her head.
Day 1 - Saturday 23rd Aug 2008
The fateful day.
Margaret suffers a heamorrhagic stroke whilst on the London Underground. Luckily there is a nurse on the platform at Osterley station and she is quickly attended to.
After being rushed to Charing Cross hospital, Hammersmith, she undergoes a CT scan followed by a lengthy operation to clear and repair the bleed in the brain.
The doctors report that the surgery went extremely well and prognosis for recovery is very good.
Margaret suffers a heamorrhagic stroke whilst on the London Underground. Luckily there is a nurse on the platform at Osterley station and she is quickly attended to.
After being rushed to Charing Cross hospital, Hammersmith, she undergoes a CT scan followed by a lengthy operation to clear and repair the bleed in the brain.
The doctors report that the surgery went extremely well and prognosis for recovery is very good.
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